Today is World Autism Awareness Day. I’m re-posting this post from Oct 24, 2011 wherein I documented our autism journey, its heart wrenching challenges. Since then our son has attended Capilano University to earn a certificate in documentary filmmaking, worked a stint at Electronic Arts and attained huge success with his RAYCEVICK YouTube channel. With half a million subscribers, he’s blowing me out of the water! More importantly, Lucas has become a fine young man and an even stronger individual.
My baby turned 17 yesterday. My baby is autistic. ASD. Aspergers. On the spectrum. Autism Spectrum Disorder, largely characterized by a withdrawn personality to varying degrees, a condition I’ve become all too familiar with, a very nuanced condition. I don’t like the term disorder. I believe there have always been autistic people, people whose neurology is wired differently, both the highly functioning and severely affected. These days it’s called “neurodiversity.”
A colicky infant, I noticed my son’s language delay around age two. I took him for a physical examination and a hearing test, both of which provided relief and positive outcomes. The next step was a visit to Sunnyhill Health Center for Children in Vancouver where he was subjected to a series of tests and evaluations by a team of pediatricians, psychiatrists, occupational therapists and social workers. Junior was diagnosed with a “moderate to severe language disorder,” which to this day bemuses me. Though late, Junior was talking, albeit not as well as his peers. Being my first and only child, I had nothing to gauge his behavior and development against. Being my son’s matrix, I didn’t detect inconsistent eye contact or social awkwardness. We were bonded, Junior affectionate.
Speech therapy was recommended and for the following seven or so years, we worked with a series of speech and language pathologists, one so horrid we turfed her after one visit. Yes, he needed to learn self-regulation but my son is a Continue reading